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Uncharitable post ahead - warning. There's an awesome movement going on in Australia that has one of the most potentially inappropriate names ever, given that it is around playgrounds - 'Touched by Olivia'. Let me tell you about it. Olivia was a little girl - a baby, really - who died of some awful rare disease in 2006. Like so many parents who have lost a child to some tragedy, her mum and dad decided that they wanted to give her life meaning by working for something really worthwhile. So they started this campaign for inclusive playspaces, called 'Touched by Olivia'. It is a great campaign, with incredible successes - check it out. http://touchedbyolivia.com.au/ But the campaign began in the name of a Dead Kid. The campaign itself is not my issue. Not at all. Any time something good can come out of something terrible, that is a good thing. I understand that grief and anger is often best channeled into something productive, and I have seen this ov...

I didn’t want you. I wish I had killed you before you were born. That’s not what is written in this article, but that is what I hear. I read this article today, a story about a couple who terminated their pregnancy at 28 weeks – because their child had a slight physical deformity. Frank and Cindy had a scan, and the scan confirmed their fears: their child was suffering from a deformity, one that would cripple its left hand. The hospital’s board of ethics approved the termination on the basis that the foetus had a disability. A crippled left hand. I read the article, sitting in my wheelchair, and I thought – if that pregnancy was terminated because of a physical difference, what hope would there have been for me? There’s a lot to consider when talking about late term termination of pregnancies. 28 weeks is a viable pregnancy – strangely, the foetus was at more risk inside the uterus than out, because it had a disability. Although there are no abortion statistics collecte...

In 1963, Martin Luther King delivered what became one of the most famous speeches of all time – ‘I have a dream’. Tonight, on the eve of International Day of People with Disability, I wonder what that dream would have looked like had King been Australian, and disabled. He might have talked about Australia signing the Convention on the Rights of Persons with Disabilities, six years ago. He might have said that this came as a ‘ great beacon light of hope ’ to thousands of Australians who had been ‘ seared in the flames of withering injustice ’. That it came as a ' joyous daybreak to end the long night of our captivity '. He almost certainly would have agreed that in 2014, people with disability, like African American people in 1963, are not free. He might have agreed that we are still sadly crippled not by our physical, neurological, or intellectual condition, but by the ‘ manacles of segregation and the chains of discrimination ’. Like the African American people of 19...

Dear Tony and Mitch On Monday, a Four Corners episode aired on ABC, where people with disability told us about being raped in care. They told us about coverups by the organisation, and failures to act on complaints. Other people with disability told us that this is a nationwide epidemic and that people living in institutional and residential care settings are being raped and abused or neglected every day. You told us that it wasn't your responsibility , but you'd do something in 2019 when the NDIS had rolled out. It is someone else's responsibility, you say. As of this morning, 3,417 petitioners disagree. They are calling for a national inquiry into violence, neglect and abuse against people with disability in residential and institutional settings. So are peak disability bodies, including People with Disability Australia , http://ymlp.com/z6IlfO, the Australian Federation of Disability Organisations . So is the former Disability Discrimination Commissioner, G...

22 hours after the unexpected deaths of two horses at the Melbourne Cup, animal rights activists are calling for immediate changes within the racing industry to prevent any more unnecessary deaths. One horse broke his leg. Another collapsed in the stalls, dying from heart failure. There are statements from the racing industry, campaigns with 22 metre billboards with the question ‘Is the party really worth it?’ and public outrage. And somewhere in America, a six year old boy was thrown over a bridge to his death. We are collecting stories of the murders of children and adults with disability in an almost dispassionate way this year. There’s little London, thrown 133 feet from the Yaquina Bay bridge. His mother called the police to tell them what she’d done. Across the ditch in the UK, a mother won the right to end the life of her disabled child, Nancy, in a country where euthanising non-terminally ill children is illegal. A Michigan woman, Kelli Stapleton, attempted to mur...

We used to call them sheltered workshops. That’s a thing of the past – they’re now branded as ‘Australian Disability Enterprises’, places where people with disability are routinely placed and where you can earn as little as $1.79 an hour. A kinder term, but ‘lipstick on a pig’ in the eyes of many. Workers are scaled by ‘productivity scaling’ – despite the fact that the government’s own productivity scaling tool (BSWAT) was declared discriminatory and illegal last year, productivity scaling in different forms continues in sheltered workshops around Australia. Sheltered workshops using the BSWAT tool have three years to stop using it, but their employees, or ‘participants’, are routinely paid far below the minimum wage. That’s the picture in Australia, not in countries like the UK. In England, a social enterprise approach is used, where the organisation trades in the market and takes on a degree of business risk, as well as receiving a subsidy in compensation for possible reduced...

Long before I used a wheelchair, another person with muscular dystrophy looked at me kindly and told me this. “It’s a headfuck, my friend,” she said. “One day you can do something, and the next day you can’t. And you wonder when you lost that ability, and how many other abilities you will lose.” I nodded and agreed and didn’t really think much about it. I’d always known I had a disability, and my official diagnosis – of limb girdle muscular dystrophy – had arrived when I was twenty three. And then one day, I went to brush my hair, and my arm felt like it had lead weights attached to it. It is a funny thing, those changing benchmarks and the way they affect you. The next day, I went and had my long hair cut short (my daughters were dismayed) and joked about it without telling anyone how heavy the hairbrush had become, how unwieldy the hair straightener now was. Just like I hadn’t told anyone how I could no longer shake a doona into a doona cover, or why the kettle was only...